Hazel was born with Down Syndrome (Trisomy 21), as well as issues with her stomach/bowel and her heart. These are common health concerns associated with Down Syndrome. So far she has had surgery on her bowels to correct the "double bubble" stomach. The surgery was done on January 28th, 2012 when she was only 28 hours old. Although scary for a while, since the surgery her bowels and stomach are fully functioning. Without this surgery Hazel was unable to eat and digest any food. As a result her first few days of life were sustained by IV fluids. It was extremely difficult to watch this as a parent, wanting to provide the best nutrition for your brand new baby. Over the 6 weeks stay in the NICU, breast milk was slowly introduced. It started at 2mls over one hour being pumped into her stomach through an NG tube. Slowly, over the next 4 weeks the amount was increased. In the end, she was taking 45 mls per feeding orally by bottle. Go Hazel!!!
Every single day that has passed since the surgery Hazel has gotten stronger and demonstrated a will to survive that humbles us as parents. She fought continuously to get well so she could start her life with all of us. Her determination to face these challenges with such ease made us more proud than we've ever been. Hazel managed to keep us calm through her ability to maintain a peaceful yet tenacious recovery.....not to mention she has the most beautiful face and magnetic personality....we can't get enough of her.
This blog is something that we put together to keep our family and friends up to date with Hazel's fight. We hope that it reaches people out there who are faced with a similar situation as ours. Our goal is that our story bring some comfort and hope to those who feel like hope may be lost. Also, we seek to raise awareness about Down Syndrome through personal experiences. Lastly, and most importantly, we strive to bring as much joy, happiness and smiles to your lives as Hazel brings to ours. Happy Reading!!!