Occupational Therapy - What's in the Bin?

How about we start off 2015 with an old (really old) Occupational Therapy post? I promise to return with a full update and account of the girls Christmas.  

OccupationalTherapyActivities
 

As Hazel grows and masters old skills, we change the activities we do in Occupational Therapy. Here are some of the toys that are in our OT bin right now.

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Hazel really does well when sitting to do these activities are part of her regular routine. We try about 3-4 days a week minimum. Sometimes we sit for 5 minutes, some times for 20. Sometimes we do all the activities, sometimes we do one. I really try to make it a fun experience for both of us. That being said, sometimes I take her out of the chair immediately after I put her in. You gotta know when to fold em'.

 

wb5

lacingbeadsOT

TurncapOT

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Hope this helps!!! Any DS parents out there that wish to share their ideas, I would love to hear them!!! Post a comment or email me!!!!

 

Gift Guide for Therapy Toys

Seeing that it's Christmas time, I thought I would put together a gift guide. I can't believe it's well into December already!!! We, fortunately, are done our holiday shopping. I'm feeling very thankful to have this month to spend just enjoying our family and friends. May your cup runneth over this holiday season. And I probably mean with eggnog and rum, but love and peace works too.  

For those of you who still have some last minute shopping to do, I thought I would try to help. Hope these toys will work for someone on your list. Here are some of the toys that we have been using during therapy time with Hazel. These are mostly Occupational Therapy toys.

 

Giftguidetherapy1,
 

Buying toys I always look for 3 qualities.

1. Developmental skills

2. Longevity

3. Fun

 

Keep this list in mind when buying for the kiddos on your list this year. These toys are not only great for children with Down syndrome but any child. These are skills all children will need to practice and toys that they will enjoy!!!

 

Lacing Beads

We started with the wooden spools and the big beads in the first set. Then we moved to the string lacing set. I did take some electrical tape and reinforce one end of the string to make it easier and more firm for Hazel to grasp.

bsslb

 

Play doh

So many things you can do with this inexpensive toy. Also, make your own and it's even cheaper. We hide little objects or animals in the Play doh and Hazel digs them out.

playdoh

 

Puzzles

Large peg puzzles are a great way to start and move onto the smaller pegs. We also use the puzzles that the doors open (hide and seek barn) and the latches board.

jumbopegshapessmpegpuzzlehidepuzzlelatchpuzzle

 

Lift Flap Books

ANY BOOK with lift flaps will do. Helps children to learn to isolate their finger to manipulate objects.

dearzoowheresspot

 

Duplo Lego Sets/Mega Blocks

Love these for pulling apart, building, and pretending.

buildabakeryMEGA BRANDS INC. - New Fall 2012 Products

10574_Creative_Ice_Cream_1920x1080

 

Blocks

These are the best!!! Can be used for building, stacking, spelling. These will be around for a while.

blocks

 

Colouring/Crafts

We try to get Hazel to do this often. Practice with grasping the markers, working on her grip.

markerstotart

 

Sensory Play

We have not yet attempted this sensory activity yet. Hoping to get this from Santa!!! It was recommended by our Occupational Therapist as a great sensory play toy.

sandsalive

 

Pretend Play

Baby dolls, kitchen set, cupcake making set, the list can go on. Use whatever toys your child is interested in. We use a lot of Little People toys.

cookieset

littlepeoplebus littlepeoplefarm

 

Slots

We use so SO many different toys for this skill. I feel like it takes a multitude of toys to master this skill. Each toy offering a different way to turn your wrist and put the item in the slot. We use buttons in a peanut butter jar, coins in a small plastic container, the fisher price pig, and on and on.

 

cash

 

 

 

Hand Strengthening - OT & Down Syndrome

Down Syndrome Awareness Month continues. I thought I would share an OT post. Hope it's helpful. We do Occupational Therapy (OT) with our daughter Hazel. Click here and here to find out more about what OT is and what we do here in our home. It's important to note that I AM NOT AN OCCUPATIONAL THERAPIST. I am just a mom who works closely with one and listens to everything she has to say like it's the bible. I strongly encourage you to speak to your child's OT before trying any of these activities to make sure they are a good fit for your child.

handstrengthpinterest
 

Sometimes children with Down Syndrome experience low muscle tone. One area this can affect is their hands, making it difficult for them to manipulate objects.

I always hesitate to add an age to these posts because every child develops individually. We have been doing this one for a while and will continue to do so as she grows. As she gets stronger, I will find more challenging objects for her to pull apart.

 

2 OT activities we do that target Hand/Finger Strengthening.

1. Pull Apart Toys

Here are a couple of things we use. We also use MEGA blocks, bristol blocks, snap beads and pretty much anything that links together. Some are easy to pull apart and some a little more challenging.

veggies

LEGO-DUPLO-Creative-Ice-Creams-300x225

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handstrength

popsicles

 

2. Play doh

I hide objects in the play doh and she digs through to find it. She also likes the feeling of it so she squeezes it and manipulates it with her hands.

handstrength1

 

There ya go!!! Too easy.

 

Physiotherapy - Strengthening Hamstrings & Quads

Physiotherapy (PT) is the therapy we use in order to help Hazel with limitations she may face due to low muscle tone. To read other posts about Hazel's therapies click here.

3-physical-therapy-excersises
 

The latest in PT around here is that Hazel very rarely bends her legs to step over things. She side steps everything. She defaults to a bear crawl when she thinks her legs aren't strong enough to lift over an uneven surface. So, she has basically learned to overcompensate for her low muscle tone and still get where she needs to be. Sounds about right. Something Hazel would do. NOTHING is going to slow this girl down.

As a result, we are trying to help her gain strength in her hamstrings and quads by doing 3 activities in PT.

 

1. Stairs

Going up and down the stairs is a great muscle strengthener. There is a lot of bending and supporting herself, balancing on one leg (holding the railing too, of course). We have her facing the stair rail and side stepping up and down. This ensures that she gets that bend in her knees and still feels safe and secure holding the railing. We happen to live in a ranch so stairs are not easy to find around here. We have 2 steps coming into our house that we use. Up. Down. Up. Down.

What do we do?

  • Use stairs at someone's house
  • Use stairs at the park on the equipment
  • Use stairs at our PT center

We do it where ever we can! Sometimes we have to be creative.

 

2. Tricycle

I have yet to decide which tricycle I am going to buy Hazel. The problem is that I can't find one that is suitable for her arms and legs. No matter which one I buy I will have to make modifications to it. For now we use the tricycle at our PT center.

Here are the 2 I am trying to decide between:

Kettler...

kettler

 

Radio Flyer...

radio

 

Any and all suggestions are welcome. What have you done to modify your tricycles for your little ones?

 

3. Jump

Trampoline = jump.  I bought ours at a local store called Mastermind. Click here to view. We LOVE it. Hazel LOVES it. She has a blast on it and she started to immediately use the muscles in her legs to bounce. It took her until about the 3rd time on it to start to trust her legs enough to start to bend. This model is small enough to fit into any home. They also have a bigger one that we use at the PT center we visit.

jump

 

Hope this gives you some ideas to bring to your next PT session.

As always ideas and suggestions are welcome here. Would love to hear from you!!!

 

Please check with your child's PT before trying any of these activities with your kiddos.

Occupational Therapy - What's in the bin?

Otpinterest
  When Hazel and I do OT (Occupational Therapy) I like to have her sit in her high chair so that she gets used to more of a structured activity time. We are kind of always doing OT when we play just by doing puzzles, snap beads, pull apart activities, eating, dressing, reading etc. But I find that it's easier to introduce new skills and activities when her and I can both focus on one thing at a time. Once she has mastered the skill I take the toy and put it in "gen-pop" (general population with the rest of the toys).

Also, I try to give her as many different ways of doing the same thing that her therapist and I can think of (most of these ideas are her therapists. I just try to find things around the house that reinforce the concepts). For instance, building blocks. She has several different shapes, sizes and colours that she can practice with. Specifically, mega-blocks, bristol blocks, counting blocks, ABC blocks etc.

 

Here is what is in our OT bin at the moment:

ot pic final

 

We work on all these activities together. We try everyday but more realistically its probably 3 to 4 times a week.

We use the containers to put the toy into that we are done with. It's important to offer her a place for them so that she doesn't throw them everywhere. OT can be very messy....Yikes!!!

The little people toys are for teaching animal sounds or to use while we read books with the corresponding animal. Girlfriend likes props!

Play-doh for hand strengthening and putting pegs into. Sometimes we sing songs and make it into different shapes. For example, "Patty Cake". We roll it, pat it, and so on.

The textured surface for colouring just makes it more interesting because of the sounds when she colours.

As always I encourage you to share "what's in your bin?" I love to hear your ideas, thoughts, comments, questions. Please leave a comment!!!

 

Down Syndrome - Our Top 10 Therapy Toys/Tools

I have always been interested to hear what types of therapy activities parents are doing with their kids with Down syndrome. There is such a vast array of options out there and I love to learn and experiment with Hazel. I like to have ideas to discuss with her PT (physiotherapist), OT (occupational therapist) and SLP (speech and language pathologist). One thing I have learned raising a child with special needs is that it truly does take a village. This post was inspired by my love for learning new activities to try and help my girl reach her full potential. I'm hoping this gives you some ideas to bring to your next therapy session to find out if these activities might work for your children.

Please feel free to share your ideas and activities in the comments of this post. I would love to hear from you.

foam1
 

1. Big Ol' Piece of Foam (PT & OT)

A piece of very firm foam that's about 2 feet x 2.5 feet. We used this for almost everything (kneeling, sitting, weight baring on arms, reaching, playing and standing). I know this could be tricky to get but ask around I am sure you will find it somewhere.

foamstand

 

2. Mirror (PT & Speech)

We used this to encourage Hazel to sit, balance, reach, and TALK TALK TALK. She loves looking at herself and hearing her voice.

mirror

 

3. Baby Signing Time (Speech)

These DVDs are great for introducing common signs to your toddler. I find that as long as I use them in her day-to-day routines she learns them in context. They are an excellent tool to teach me the signs so I can use them to communicate with her.

bst

 

4. Flap Books (OT & Speech)

flap book

 

5. Large Peg Puzzles (OT)

jumbopegshapespuzzle

 

6. Pegs (OT)

pegspegs

 

7. Blocks (OT)

Stacking anything is the idea. It doesn't have to be blocks but this is what we use. We also use nesting cups, books etc.

abc_blocks

 

8. Piggy Bank (OT)

Anything that has a slot and something to put into the slot is a winner here.

piggybank

 

9. Push Toy (PT)

We used this toy for the longest time. We started with reaching, then kneeling, then standing, then walking. It really is a great investment.

pushtoy

pushtoypushtoy1

 

10. Exercise Gym (PT)

We used this for standing and shifting weight on each leg. Then we used it to get her to cruise around the outside when she was bigger. Also, we used it for pulling to stand. We used this toy for a long time so I think it's definitely worth the investment.

 

exerexer

 

So these are 10 of our favourite tools to use in therapy. To read more about what else we do check out my older posts here.

Also, don't forget to take a second to share your ideas or activities that you do with your children in the comments of this post. Also, feel free to ask any questions you may have!

Wishing you all success in your current and future therapy ventures!

3 Speech Therapy Activities - Down Syndrome

One of the therapies we do with Hazel is Speech Therapy. Sometimes children with Down syndrome experience challenges with their speech development. In order for us to help Hazel to be prepared to face these challenges, early intervention with speech therapy has been our biggest tool. 

Down syndrome aside, I think that it is important to talk to your kids as much as possible, especially during daytime routines. Repetition and being able to anticipate routines helps kids to understand what is about to happen and eventually comprehend the language being spoken. We talk to Hazel constantly. I feel like a sports announcer at home a lot of the time. Announcing every activity before we do it.

A couple of examples…

  • “Let’s go and eat Hazel. Are you hungry?” She signs, “eat” or says “mmmmmmmm” (or both)
  • “Would you like to read a book?” She signs and says, “book”
  • “Would you like to get up?” She says “up”

I really just try talking to my girl all the time and exposing her to the language so that she can start to understand and try to imitate. It's no different than what most of you do in your homes.

 

speechimage
 

1. Imitation

When we started this, I tried to get her to imitate as many sounds as possible. Examples would be, “ma ma”, “bah bah”, “na na”, “ta ta” and so on through the alphabet. She tried her best to repeat after me and I would clap and tell her she was a good girl no mater what sound came out of her mouth. As long as she tried I was happy.

We also worked on attaching a meaning to that sound. Some examples:

  • Bah - Bye Bye
  • Baa – Bubbles
  • Na Na – Nonna or Nana
  • All Dah – All done

We still work on imitation, but now I try to get her to repeat full words. She tries and I clap and make a huge deal. It really is quite the production. The more I repeat, the more she tries to say it back. I also try to sync it to signs whenever possible.

 

2. Reading

Read. Read. Read. All day, every day.

I feel like I read the same books over and over and OVER. Hazel has definitely decided which ones are her favourite and she will sit all day and listen. Now she is starting to make sounds that she remembers as we go. She sits and reads books to herself ALL DAY. Turning the pages and pointing to pictures and words. I ADORE watching her.

For example:

  • We do alphabet sounds with some books, and I try to get her to repeat.
  • While we are reading books we practice animal sounds.
  • I try and get her to point to different things on the page (Where’s the ball? Where’s the pool? Etc.)

 

3. Singing songs and signing along

This is by far Hazel’s absolute favourite thing to do. I sing just about any song I can think of and just make up signs to it. Anything will do as long as I am consistent. While I sing I pause for a moment to let her try and show me what's next. In the beginning it really helped her to focus and try to come up with the next action. She knows so many now and loves it. It is really adorable to watch too!!!

Some examples of songs are:

  • Itsy Bitsy Spider
  • Wheels on the Bus
  • Five Little Ducks
  • Row Row Row Your Boat
  • Twinkle Twinkle

She knows each song so well now she's trying to sing along. Also, she is able to communicate to me which song she wants me to sing to her. This really has been a great speech tool, in that she has learned to communicate and sign along. Try it with your kids, it's the cutest!!!

 

Small Disclaimer: I just want to remind everyone again that these activities were given to Hazel, for Hazel, by her Speech Therapist. If you would like to try any of these at home with your babes, please ask someone in your local community for support and advice on what will work best for your children.

6 Occupational Therapy Activities - Down Syndrome

 

DSA4
 

As I have mentioned in the past we do 3 different types of therapy with Hazel on a regular basis:

1. Occupational therapy (OT)

2. Speech therapy

3. Physical therapy (PT)

**************************************************************************************************

This post will focus on OT. To learn more about OT click here and here. Also, there is a great book I mentioned in my last PT post called, "Fine Motor Skills in Children with Down Syndrome." Between the help we get from our OT and this book, I feel I have a really well-rounded idea as to the skills Hazel needs to work on.

As I mentioned in the PT post, Hazel is very focused on gross motor development at this stage. She is walking, dancing, balancing and in her opinion, all that leaves little time for her to sit still and build a puzzle. We all have our challenges.

OT has become an extremely trying experience on a daily, although lately it seems to be looking up.

She is into throwing her pegs, eating her puzzle pieces and walking away with everything. Some days I feel like a complete failure, others I feel success. Such is parenting I guess???

My goal whenever we do OT activities is to try and make Hazel think we are playing and that it’s a good idea.

I begin by creating a play circle. I take out a few toys that reinforce the concept or skill we are working on and scatter them around the room. I like to give her the option of which one she would like to play with by letting her explore and move to the toy that interests her. However, I think now I might have to put her in a booster chair on the floor because she is far to excited about the fact that she has control to get up and walk away from me now.

ot

Usually, our OT sessions vary in length and take place several times a day or whenever we are sitting and playing together.

Here are some of the activities we do:

(oh yes...before I forget to mention, I must say that we do NOT do all these activities everyday. Only supermom could manage that...I mean, I'm close but I just can't find a cape I like)

 

OTimage
 

1. Board Books

We are trying to encourage Hazel to turn the pages of a book. Also, working on manipulating flap or pop-up books. She has been working on getting only the one page to turn at a time as well as lifting flaps or sliding tabs.

I have tried:

  • Putting tape tabs on each page for easy grip
  • Hand-over-hand (less is more)
  • Books that have “peek-a-boo” tabs and lift flaps (working on both object permanence and page manipulation)

ot4

PicMonkey Collage

 

2. Puzzles

Big knob puzzles are a winner in this house. Hazel loves them so we play with them often. Lots of modeling - taking pieces out and putting them back in. Again, I do hand-over-hand with her. She tries so hard to get them to go in the right spots. Circle is her favourite. She has been really working hard on this and making great strides. I'm super proud!

ot1

 

3. Pegs

Putting small pegs in a pegboard or even this Melissa & Doug peg toy. It’s pretty straightforward. No re-inventing the wheel on this one.

Pegs are not well received by Hazel. The absolute lost thing on earth she wants to do with them is put them in the hole. Throw - YES. Eat - Of course! Bang together and pull apart - ABSOLUTELY! But NO - never put them in the hole. Difficult to even get her to try.

Need a new plan. Any suggestions???

The pegboard our OT uses has a little bit bigger holes, which are outlined with a black sharpie marker. It makes it a little bit easier to see the target. She suggested we could use a piece of Styrofoam with handmade outlined holes in it. We haven’t tried it yet.

ot3

 

4. Toys with Slots, Pull Apart Pieces & Stacking Blocks

Piggy bank, monkey barrel, Alpha-pops, snap beads, Velcro veggies. We use any blocks we have and try to go from stacking big ones to smaller ones.

ot2

PicMonkey Collage

 

5. Self-feeding

We use the suction cup bowl and spoon that came with it (although I heard they have spoons that curve toward their mouth that I might try too). I try to give her something she really enjoys like ice cream, yogurt, oatmeal etc. It’s very messy but she’s getting better all the time. I also give her Popsicles a lot. She definitely knows her way around a Popsicle (and an ice cream cone). We do try the fork as well but I do A LOT of hand-over-hand with her to help her get the food on it. She’s good about bringing it to her mouth if it’s loaded.

6. Isolating the index finger

We have several toys that she needs to push the buttons on to get them to sing her favourite songs and this is great motivation for her. I put the toys out and she finds the buttons and off she goes. There’s usually a lot of dancing, clapping and smiling with this activity, so naturally it's one of my favourites.

Also, I give her blueberries and Cheerio’s to eat.

 

Small Disclaimer: I just want to remind everyone again that these activities were given to Hazel, for Hazel, by her OT. If you would like to try any of these at home with your babes, please ask someone in your local community for support and advice on what will work best for your children.

 

Top 3 Physiotherapy Activities

It has been a great summer in terms of PT for Hazel. We have been given a bit of a break. Hazel has been going through a huge gross motor change and focus since she has figured out how to walk. It's so nice to let her just do her thing and watch her try to figure out how her body moves. She's constantly experimenting with movement and balance, dancing and swaying. Some of our best entertainment is to just sit back and watch her go.  

Small Disclaimer: I just want to remind everyone again that these activities were given to Hazel, for Hazel, by her PT. If you would like to try any of these at home with your babes, please ask someone in your local community for support and advice on what will work best for your children. Also, we always follow Hazel's lead in terms of how often we work on certain skills with her. If she doesn't want to, we don't force her (especially with PT - she has a motivation that is all her own - Yikes!)

 

Please feel free to leave any questions you might have about Hazel's therapies in the comments of this post, or email me and I would be glad to answer.

 

ptimage
 

1. Stairs

This one is difficult for us to do on a regular basis because we have a ranch. Whenever we go somewhere with stairs, I try to get Hazel to go up. She can go up if she chooses to, BUT we all know if she doesn't see the value in it, then she really doesn't see the point. So there's that...

We are now starting to work on going down the stairs. It usually results in tears of some kind, but only because she is not in full control and needs help to get where she's going. Although, lately she has been very interested to learn how to go on her belly down the stairs. I think she realizes going down gives her freedom to explore new places. FUN!!!

 

2. Riding Toy

PTbike

We are working with her on being able to move the rider herself. The goal being to get her to activate her hamstrings and pull herself along.

And to be completely honest we don't put her on it as much as we should (it's been a little more difficult for me to bend that way for long periods of time). It doesn't usually happen at this point, but she has started to show interest in being on it. I am not sure if it's too slow for her and she wants to get off and walk or if she doesn't really see the point in sitting on the car. She likes to get off and on but no forward movement so far. She has managed to make it go backwards a few times.

PTbike1

PTbike2

 

3. Walking Toy

Hazel has been showing interest in using the walking toy recently. It was difficult to get her to want to do this, as crawling was so much faster for her and she knew it. Now that she is more comfortable walking, she seems to want to do this more often. I know it seems backwards that she learned how to walk without it and now she wants to push it.

Even though babies know how to walk it is still important for them to learn how to push, pull, and maneuver different push toys. Eventually they learn how to reverse, go in a zig-zag pattern and so on, which is important to children's development.

Here's how we start...

pt

And usually how we end...

pt1

 

I like this push toy because you can determine the weight that goes into it. We have 25 lbs in the base so it WILL NOT tip over when she pulls herself up on it. I think you can get them at IKEA. I also like it because there are no "bells or whistles" on it to distract her from what she is supposed to be doing - pushing it.

pt3

pt2

 

 

Helpful PT & OT Resource:

You can find more information in the book, "Fine Motor Skills in Children with Down Syndrome."

I love this book. It really breaks down all the tasks and skills that help children to learn and develop. It gives useful toy suggestions and great teaching techniques. Even though it is more focused on fine motor (OT) activities rather than gross motor, it does touch on PT as well. I will refer to this book more when I do the next OT post.

 

DSA4
 

There you have it. PT in a nutshell!

PT & OT for Children with Down Syndrome

Since Hazel started crawling our main focus for physio has been to encourage her to crawl as much as possible. We have not been working at all on bringing her to the next step which is walking (although she has her own ideas about standing independently and cruising). I am a huge fan of keeping her crawling for so many reasons.  

1. She's easier to chase after while crawling

2. She is getting so much more coordinated by strengthening all her muscles by using them often and equally.

3. She is acquiring a keen body awareness for all her muscles. Even down to the pincer grasp. It is coming along nicely since she is constantly aware of her fingers because of the constant weight baring through her arms while crawling.

4. She is easier to chase while crawling (Oops...already said that)

 

Small Disclaimer: I just want to remind everyone again that these activities were given to Hazel, for Hazel, by her OT and PT. If you would like to try any of these at home with your babes, please ask someone in your local community for support and advice on what will work best for your children.

Another Small Disclaimer: My intention for these posts is to provide ideas and information about OT, PT and Speech for anybody who feels compelled to learn or is interested in what it looks like in our home. It is NEVER to compare Hazel to other children. My favourite thing about kids is that they are all different and do things when they are ready and in their own time.

Also, we have stopped doing some of these activities and still continue to do others. Since she has started standing and cruising on her own we have added some new activities that I will include in the next PT/OT post.

 

The activities this time around speak for themselves...

 

PT
 

1.  High Kneel on Couch

pt7

 

2. Pull to Stand & Cruising

We use anything that is the right height for her to pull up on. Actually she is good at scanning a room and trying her darnedest to pull herself on everything in it. (Who says "darnedest"?)

pt1

pt

 

3. Bench Sitting

pt3

pt4

pt5

We have the toys within reach on either side of her so she has to turn and reach/lean down to grab the toy and bring it up to center.

pt6

 

4. Crawling...crawling...crawling

 

OT
 

1. Self feeding with a spoon and fork

She does great with this as long as I load it for her. She is pretty proud of her self, actually!!!

 

2. IN & OUT

We practice with anything and everything. PRAISE!!!! Girlfriend can put things IN & OUT!!!

Here is a pic of the toy that really drove the concept home for her. She is obsessed!!!

DIno

 

3. Lots of listening to music while we play

Listening to music facilitates movement and also allows me an opportunity to add actions and signs that she is starting to learn slowly.

 

4. Working on early feeding signs

We are working on "more", "eat", and "drink." She has mastered "all done" and knows when to use it. The other are more difficult because she won't let me use her hands to show her how to do it. She just gets mad and pulls them away. (Same with loading her own spoon, won't let me guide her hand)

 

5. Pincer grasp

Like I said crawling has helped her a great deal with this. I just try to give her small pieces of food and try to encourage her to use her fingers to grab it. We are laid back about it but it is coming along. We are going to start using 1 inch cubes and smaller toys for her to try and manipulate them with her fingers.

 

Have a good week everyone!!!

 

A girls gotta have fun

Here is a video of Hazel and I doing physio. Well, it stared out as physio and ended up just being super fun. She figured out that she can fall to the sides and back without any injury. That and it's a super bouncy landing. Not really the goal while doing physio but, a girls gotta have fun too.

 

Click here if having trouble viewing
 

If we were doing this properly, as a PT activity, I would be bouncing her much slower and moving her around in a circle very slowly. Hazel would be balancing herself by activating her muscles in her stomach and legs. It's a natural reaction for her to try and keep herself upright. It works great for core strengthening.

 

New goal for Chasing Hazel's Facebook page.

47 Chromosomes = 470 "likes"

Don't forget to click here to stop by her page and hit "like" for updates on all the shenanigans Hazel is up to.

 

Thanks for your continued support. Hope this video brings a smile to your Tuesday!

PT & OT 9-12months (for Hazel)

First, I MUST share this video. It's the John McGivney Awareness Video, the facility where Hazel's therapists work. LOVE!!!  

Click here if having trouble viewing
 

Amazing, right?

Ok...moving on...

 

This post is a medley of old and new(ish) Physical Therapy (PT) and Occupational Therapy (OT). I am working on a new post of activities from 12 months and up.

YIKES!!! Time fly's...Hazel grows and then we start new activities.

Hazel started to do these activities when she was 9 months. She is still working on some and has mastered others. As with all of my PT and OT posts, these activities have been approved by Hazel's therapists for Hazel, please check with a therapist in your local community before trying any of these activities with your children.

 

Occupational Therapy

1. In & Out

Hazel is working on putting objects in a bowl and taking them out. We use any big bowl available. I think maybe a metal one would be better so that when she drops something in, it makes a louder noise. Sometimes when I am feeling brave, we use a huge metal pot (side note: holy it's loud!!!) Any little toys work to drop in, links, cubes, pegs, balls. Hazel often has a hard time hearing anything drop in because she is constantly talking and babbling while playing. What is that saying - "you can't talk and listen simultaneously" - wait...did I just make that up? Oh, either way, you know....

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She takes toys out of her bin, not so much put them back in. That's my job. I think she just wants to make sure my position as maid is secure. She's so kind and thoughtful.

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2. Drinking/Eating

We are always working on eating and drinking. Hazel practices drinking out of a cup and a sippy-cup everyday. We try to encourage self-feeding by giving her pieces that she can pick up herself and put into her mouth. Her pincer grasp is not finessed enough for her to pick up really little objects like Cheerios, but she does well with penne noodles, crackers, bread and bananas (to name a few). Poor girl still has no teeth, so taking bites is difficult. When she gets the pieces into her mouth, she can't bite a piece off. Frustrating!

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3. Rings

Put them on. Take them off. Put them on. Take them off. Put them on...

So that's that one.

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Oops...that's cheating! You can't just dump them all, Hazel!!!

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Oh yes...bang them together is another game she likes to play.

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Physical Therapy

(these activities are not all we do, just some)

1. Weight Bearing on Arms

This one is a precursor to crawling. Here is one of the positions that works for getting her ready to push herself up in a 4 point. It is also encouraging her to weight bare on her arms. We try to get her to go from one side to the other. I find it easier if you hold a toy out for her to see, however, it feels like I need another hand to support her and hold the toy. You have to find what works for you.

When I move the toy in front of her, she follows along with it and sits looking forward and then I drag it to the other side and she leans to reach it. It's a tricky one!!! This was also great for getting her comfortable with putting herself in the sitting position. She would push herself back into a sit.

She would often shift her weight and would be in a 4 point stance for a couple of seconds, which was great to get her used to the crawling position.

 

2. High Kneel

This was my favourite PT activity (now she does it all the time on her own while she's playing)

It is easy and efficient for mommies and very effective in teaching backing in to a sit. It is also perfect for strengthening her arms by encouraging her to weight bare on them for a extended periods (by this I mean about a minute...maybe more if she was really into the toy that day). When backing into a sit she just pushes off the toy with her arms, leans to the side and goes down.

 

I would often switch up the tools we used to get her into a high kneel. Here she is leaning on a pillow or nursing pillow that is on top of the foam piece we have. Works perfect. Sometimes I would put her mirror in front of her so that she would stay there and talk to herself for a while.

At some point, she started going into this position and rocking. Crawl prep...

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3. Crawling

Turns out this is the best PT there is. So, we just encourage her in which ever way motivates her that day to crawl around the house. Under the advisement of her therapist, we are not working on walking with Hazel. She is gaining so much strength in her arms, legs and core by crawling that we are just content to keep her doing that.

 

Speech Therapy

1. READ! READ! READ!

Lots and lots of reading. The same books over and over. We make sounds of animals, we point to the text. We start again...

Girlfriend is obsessed with books. She will sit forever with me and read. I LOVE IT!!!

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Sometimes, she can't decide, speech or OT??? Decisions...

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We have since added a bunch of new activities to our daily routine. I will share in a later post. Hope this helps to give some ideas!

Happy Days...

Silver Lining

  When the geneticist sits down and tells you your baby has Down Syndrome, many thoughts go through your mind. Lots of things are said. Doctors and nurses tell you about the "challenges" that may lie ahead.

One of the thoughts, is that your baby will be different from all the other babies. Immediately you think, "woah, 'different' - that can't be good - doesn't sound good."

We all want our babies to be different, unique in a way, but when push comes to shove, not really. We don't want them to be that different. We want them to be the same, and do all the things that every baby does.

Any one of you moms out there that has been on Baby Center - EVER - FOR ANYTHING - knows what I mean. It's fine...no judgements!!! Chasing Hazel is a judge free zone...really...I have no room to judge - TRUST ME!! I digress...

So, I was saying...you find out your kid has Down Syndrome. For a minute (k...so way longer than a minute really) you feel like life as you knew it is over. Long story short (for now), you try to figure out what does it mean for your baby? Will they do all the things other babies do? It's scary and daunting and scary.

 

Here is the silver lining...

Hazel and all other babies like Hazel, will do all the things other babies do. They might work a lot harder to get there, but one day it just happens, they are there. We are blessed to be a part of their journey.

And mama pride!!! Well proud does not even begin to break the barrier of emotions you feel that your baby is different, but also very much the same.

Best of both worlds really.

 

Hazel crawled today...

 

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With pride and a happy heart

See you tomorrow

 

 

5 Physiotherapy Tools - Down Syndrome

Here is the latest PT happenings in our house (from 7-9 months).

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Sorry about the randomness of some of these photos. We do so many different things that is is hard to keep them all in order. Also, I am sure I have missed something because she grows and changes so fast, which means all her PT changes as well.

Disclaimer:

All of the activities shown here have been approved by our PT and OT. Also, these activities benefit Hazel and you should consult your PT and OT if you are thinking about trying any of these with your children.

Another important thing to mention, is that when Hazel is not happy doing any of these activities, we stop. We try something new and if she's not into it, we drop it for a while. I never pressure her or force her to do any PT or OT.

 

 

Our Tools:

1. The Foam

When using the foam in this position, it encourages Hazel to weight bare on both her knees as well as her arms. These pics are from a while ago.

If I lean her up against the side like this, she leans and rests her arm on the foam. It gives her practice weight baring on one side at a time. It, also, helps her to support herself better because her arms are a little shorter than most.

We cut the foam so that Hazel's legs will stay together. This ensures that the weight is on her knees and that she is not flat on her hips.

Sometimes I put the foam out in front of her so that she can reach to put weight on her hands as well as her knees. Trying to get her into the 4-point crawling position.

We are doing some PT outside (this pic is old). I think it's nice to change the scenery so that Hazel always has something new to look at.

In this position, Hazel is learning to put weight on her hands and elbows.

I often will hold a toy up for her to reach for so that she learns to shift her weight from one side to the other.

Sometimes she doesn't like to do PT, so we stop.

We have her sit on the foam and pull herself up. She gets a great bend in her knees and it forces her to use all the muscles in her legs to stand.

As you can see, she is pretty proud of herself (I know the pic is blurry but look at that face).

 

2. The Mirror

One of my favourite PT toys to use is this mirror. Hazel will sit up for the longest time talking to herself, and trying to grab at her face and hands. It is great for encouraging her to remain in the sitting position, rather than grab a toy and then fall over and just lay down and play.

Plus, it has the added feature of being the most entertaining thing for me to watch. She yells, dances, makes silly faces. It's great!!!

Oh yes...and tries to give herself a kiss.

 

 

3. The Medicine Ball

The medicine ball is the BEST!!!

Hazel loves it and it is so effective for core strengthening. It was a little nerve racking at first but we took it slow and now I really love it. We use it everyday. I bounce her really slowly and move the ball from side to side and front to back. Her natural reaction is to stay up so she is constantly flexing her abs trying to balance. She thinks it is pretty funny.

 

4. The Play Mat

These pics are pretty old but I still put her on her play mat sitting so that she can reach up and play with her toys.

Hazel has been really working on core control. Her posture is getting very straight. She practices sitting often and enjoys the freedom she has with her hands.

 

5. The Exersaucer

She spends time in here everyday and is really getting the hang of standing and sitting. She thinks she's hilarious when she stands (again...blurry but the faces kill me).

 

 

Down Syndrome and Occupational Therapy...huh???

What exactly is Occupational Therapy (OT)???  

This is a common question that I get asked when discussing the services and therapy that Hazel receives regularly. It is a common assumption that those with t21 need only physical therapy to increase their muscle tone. They actually need OT as well.

 

The definition according to the Canadian Association of Occupational Therapy is as follows:

"Occupational therapy is the art and science of enabling engagement in everyday living, through occupation; of enabling people to perform the occupations that foster health and well-being; and of enabling a just and inclusive society so that all people may participate to their potential in the daily occupations of life."

 

I see it as a way to help make Hazel more independent. At the moment, her OT is working with us on how to master everyday skills, such as, feeding herself, fine motor skills, and skills that will lay the foundation for more complex actions as she grows.

Here is an example of Hazel doing her Physio Therapy (PT) and OT. The reaching to grab a toy is her OT at work. The fact that she is weight baring on one arm and knees is a PT skill (I will post a more specific post for the PT that we are doing soon).

Now that she is 8 months old, we are also working on how to self feed, how to chew dis-solvable solids and how to drink from a cup. Hazel is doing very well adjusting and working hard to be successful at these skills. As we have seen, she is always up for a challenge.

It is very important to remember that every baby is different, and will reach these milestones when it is right for them.

 

Here is a great video, which was put together by some university students to explain what  OT is. I love it...they came up with a very creative way to get the message across.

 

Hope this helps!!!

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Occupational & Physical Therapy for Babies

For Down Syndrome Awareness month, I thought I would put together a post of all the PT and OT Hazel has done from birth to 6 months (she is doing more than this now, I will post later). I tried to be thorough and remember back to when we started. Hope it helps!!! This is our experience and if you would like to try any of these activities, please ask a professional in your community.

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We are so fortunate to live in a community that has excellent resources for children with special needs, like Hazel. There are so many countries in the world that are not equipped with the financial means or the expert knowledge that Canada has to support children with different abilities (K...I am stepping off the soap box now, but I am only putting it aside, this topic will be addressed another day). I hope that this post helps those who feel they live in a community that doesn't have the best support for their children.

The John McGivney Children's Center (JMCC) provides us with all the services that Hazel needs, such as occupational therapy (OT), speech therapy and physical therapy (PT). I've sung this tune before and I will continue to sing the praises of the therapists that come to visit and play with Hazel. They are always encouraging, positive and extremely knowledgeable in their respective fields.

(Note: Hazel is awarded in-home services as a result of her cardiac issue (VSD). She is considered medically fragile and therefore needs to be in a clean sterile environment. When she is bigger and stronger she will receive all of these services at JMCC.)

Now that Hazel is done her surgery and getting older we can do some really fun muscle awareness and strengthening activities with her. We always follow her lead and never push her to do anything unless she wants to. For us, and all her therapists, it is first about Hazel being happy and content, one of the reasons I love them so much. Hazel has demonstrated a will to grow and meet her milestones all on her own with little help from us. We are only providing her with the foundation and from this she will build her empire.

Disclaimer:

I want to make a note that I am not suggesting that anyone do any of the activities that Hazel does without proper instruction from a therapist. Every child is different, works at their own pace and has needs that are their own. I am outlining the basics for those of you who are interested and can gain some understanding of what we do to support Hazel. Also, seeing what we do may spark discourse with your therapist to see whether these activities would benefit your child.

I wasn't as diligent at documenting her OT and PT at the beginning, perhaps because there really is not much we did early on. Starting from when she was about 3 to 4 months old we would put her laying on her side up against the back of the couch. We would often hold a toy out in front of her to encourage her to bring her hands to her mid-line. We gave her as much tummy time as she would allow. I would also carry her around the house in my arms while she faced out, which also encouraged strengthening the neck muscles. Rolling over started when she was about 4 months old.

Hazel in her side lying position...

Hazel working on balance and sitting up...

Sometimes I put her nursing pillow in front to support her and give her a top to play with her toys...

Now that she is 7 months and has mastered the art of rolling everywhere and anywhere, we are moving on to sitting up and being able to shift her weight from one side to the other, which will help to facilitate going from laying to sitting. Hazel has been doing very well and can sit balanced for a while, both using her hands out in front and with no hands at all.

Here is the position we have her getting used to. This will help her to transition her weight from one side to the other. So she will be able to turn to either side to play with her toys. Also, this will help her to learn to lean on and strengthen both arms. There are pictures attached of Hazel with her OT...LOVE LOVE LOVE her!!!!

Having her legs tucked under her like this will start getting her comfortable on her knees for crawling. Her arms are on top of her OT's thigh. We are making sure her knees and feet stay together so that her joints are not getting over extended. The OT is just putting gentle pressure on her leg to keep it tucked under and in the right position.

This one is just sitting with her feet firmly on the ground, which will get her used to putting pressure on her feet. The OT is holding her hand and applying light pressure to the tops of her knees or tops of her feet to create muscle awareness for her legs and feet.

This is Hazel's play arch. This is another way to help her to shift her weight and get used to balancing her weight on either side. It also encourages her to grab and play with her toys, aiding her along with her gross and fine motor skills. Her OT is there to guide her and let her move where she would like. She is allowing her enough freedom to go to whatever toy she wants, she just keeps her hands on her to support her.

FINALLY, the medicine ball has a purpose in our home!!! By putting Hazel on the ball and gently bouncing her on it in the position shown, it creates muscle awareness all over her body.

Her OT is applying firm pressure to keep her from slipping off (obviously) and so that she feels comfortable. She doesn't want her to over-extend any of her muscles by trying to look up and back at her.

She can let her stand on her legs, as shown here, to get her used to using the muscles there.

 

 

 

 

Rolling Over???

Now that Hazel is feeling up to it and she has no restrictions on movement, we have been getting back into physio. Hazel rolled over for the first time a while ago, and then continued to do so until she had the motion perfected. She could cover quite a bit of ground pretty quickly before her surgery. Now that she has been laying on her back for the better part of six weeks, she has become, let's say "comfortable" with remaining on her back at all times. We are often met with resistance when we put her on her tummy to strengthen her neck and chest muscles. We have been putting her in her Bumbo chair (rest assured it is not on the kitchen counter and she is not unattended while she is in it) to practice sitting up. It has been doing a great job helping her to gain her neck control back.

As you can see she is capable of holding herself up...

 

...so I can never understand why she gets so upset...she DOES know how to roll over...but why should she...right???

Eatin' and Doing Some Physical Therapy

We are just about back to normal here now...Hazel has never been happier!!! We have been enjoying the rest of our summer, trying to visit with family and friends. It has been so nice to enjoy the weather going for walks with Nico. Our steps seem to be lighter these days with the surgery out of the way. We walk with ease and peace toward the bright future our girl will show us. We are totally accepting and open to all she will add to our lives. Our little girl is content and comfortable. I have never seen her smile more. She smiles all the time...at nothing...just in case you look at her. My heart is smiling right along with her!!!

We are still introducing all kinds of yummy foods to Hazel. She really enjoys eating and is becoming quite good at it. She doesn't waste a drop. Even the food that ends up on her hands eventually makes it to her mouth. She loves sweet potatoes, green beans, pears, bananas, and avocado. So far everything we have given her is well received. She loves to put on a show in her chair, talking and eating at the same time. My favourite is when she blows and spits the food back in my face while she is eating. It doesn't happen often, as she doesn't want to waste, so I find that I am constantly on guard for that moment when I end up with a splatter of green beans across my face.

She likes to try and do it herself already....so my fear is continually getting stronger for the battle of wills to be had in our future!!! She loves her Nonna and, of course, Nonna will let Hazel do whatever she wants!!!
Here we have tricked Hazel into doing her physical therapy. The Bumbo is great for getting her to practice sitting up. I just put it on the play mat so that she can reach out and play with her friends. I find this extends the time she will sit in here by at least 10 minutes. After the surgery, she was used to laying down all the time so she lost a little of her neck control. This was really effective in helping her to get it back. A few minutes a day and she is back to hold her head up high. I will post again soon about the other things we do to work on sitting up and core strengthening.

Hazel Continues to Impress

Have you heard of the John McGivney Children's Center? We are lucky enough to live in a community with an amazing resource to help parents with children like Hazel who just might need a little guidance to keep them on the right track. They help children with Trisomy 21, as well as other children with special needs. We are grateful for their expertise and guidance. They have proven to be a great support to us as we try to do our best to raise our daughter.

We had a visit last week from the speech pathologist. She came over to make sure Hazel is on the right track with early language development. Her goal was to offer suggestions and learning strategies for us to use to help Hazel continue to develop new skills to the best of her ability. Upon her arrival she was surprised to find such a strong and healthy looking little girl. A far cry from her days in London. The description of the baby in the file she read was not the same baby she came face-to-face with. She was very impressed with Hazel and all her accomplishments so far.

It is common for children with Down Syndrome to have difficulties with speech. One of the reasons they experience this can be due to low muscle tone in the jaw. So far, Hazel seems to be ahead of the game in this regard. Her muscle tone is very good and she has begun to babble and imitate, skills a 6-9 months old baby can do. The speech pathologist was shocked to see her progress so far.

We don't know what future challenges await Hazel, but we are proud of the milestone that she has achieved. We are never looking at the things Hazel can't do, but celebrating the things that she can!!

Here is an example of how vocal Hazel is. She is perfectly happy in this video by the way...

Nobody told Hazel she has Down Syndrome...

While Hazel was in the NICU in London, one of her nurses, Marie, and I were discussing Down Syndrome and the impacts that it may have on Hazel, particularly the low muscle tone aspect. It was then that Marie began to tell me about when they were getting Hazel ready for her bowel surgery. She was only 28 hours old and being prepped for a major surgery which included an IV line for anesthetic. Marie proceeded to tell me that Hazel was not happy with this idea at all. She screamed and carried on, pulling and kicking so much that she had to really hold her down in order to get the job done. Marie looked at me and said, "Hazel has Down Syndrome, but nobody told Hazel!" Since then, it seems, Hazel has been making it her mission to prove to the world that babies with Down Syndrome can do all the things that other babies can do, even if it takes a little longer. In regard to her muscle tone, the physical therapist came to visit Hazel a couple of weeks ago and she was very pleased with her progress. Hazel holds her head up balanced (I think she has success here because she is so nosy, always trying to look around to see what is going on), she can reach and grab her feet, she can lift her head up 30 degrees when flat on her stomach and 90 degrees when we prop her up. She can roll over from her back to stomach, also from her stomach to her back, and has been practicing how to sit up with support. She can manipulate, grab and hold her toys. Hazel enjoys having conversations, which include pleasant cooing and smiling, with her elephant. But, as for Owl on her play gym, I feel bad for him because she kicks him around a lot and yells. I guess we can't expect her to get along with everyone!!!

Here is what we very often see when Hazel is in her bassinet...this is how we know she is awake!!!